Home
About us
Our approach
Our purpose
Our team
Our organisational structure
Scientific and Medical Advisory Committee
Consumer council
Rare Diseases
Why rare diseases?
What are rare diseases?
Rare Disease Categories
Resources
Our origin story
The Avengers
Ziya’s Story
Zachy’s story
Macy’s story
Layla’s story
Marc’s story
Nathan’s story
Our programs
ZIYA – Mental wellness
ZACHY – Hospital support
MACY – Patient advocacy
LAYLA & ARLO – Community support
MARC – Early intervention
CONOR – Research
NATHAN – Education
Research
Our current research
Carers
Suboptimal Health Status
Rare disease research
Virtual catalogue
Scientific publications
Events
The Nathan Centre launch
Parliament House
RARE DISEASE DAY – FEBRUARY 28TH
Get Involved
Fundraising
Our partners
Supporters and friends
DONATE NOW
Press information
Contact us
What are rare diseases?
Rare diseases – at a glance.
